photo by Nell Mednick

About Survivor Mom

I am the surviving, 75 year-old mother of Peter Weisman who died of Duchenne muscular dystrophy in 1980. I wrote a book called Intensive Care: A Family Love Story about the experience. The book is about how a family struggles and often thrives, even under the constant threat of death. This blog is my cyber-sequel. From a survivor's vantage point, I'm going to blog, in honest detail, about how life was then, and how it is now. Expect to feel better.

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I am not a saint; I’m you.

Sep 20, 2012

Before Random House published it, five major publishers turned down Intensive Care, my book about bringing up a child with Duchenne muscular dystrophy. They thought the mother was "unsympathetic." She said the f-word.

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Good-bye: An open letter

Jun 06, 2014

Good-bye: An open letter to parents, relatives, and friends of boys with Duchenne Muscular Dystrophy.

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What you told your sons about dying

Mar 30, 2014

YOUR RESPONSES TO MY BLOG, TO TELL OR NOT TO TELL were, by turns, honest, sensitive, evasive and surprising.

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To Tell or not to Tell – That is the question

Feb 20, 2014

Should I have told Peter that he was going to die? This is a question that haunted me during Pete’s15 ½ year lifetime and for the three decades since. I never made a conscious decision not to tell him.

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Dec 04, 2013

SIBLINGS: Nobody – not parents, not children – escape this worst kind of sibling rivalry.

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Abortion: Your voices, Pro and Con

Sep 28, 2013

I asked parents of boys with DMD to speak candidly about whether or not you would have an abortion at ten months if you knew that your child would have DMD.

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Would you abort?

Sep 07, 2013

If you were contemplating getting pregnant again, would you want to take advantage of prenatal testing to learn if your fetus was male and had DMD?

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My Speech delivered at the PPMD Conference in Baltimore

Jun 29, 2013

My husband Larry and I are here today as DMD veterans – relics, really. I am not an expert on anything except our son Peter, who was diagnosed with DMD in 1968 at the age of 2, and died in 1980 at the age of 15. I have no credentials, unless you count perspective.

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Liza and Me

Jun 19, 2013

The truth about my romance with Liza Minnelli

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Crazy #2

May 15, 2013

Crazy is normal when you're trying to save your child's life.
Read Crazy #1 first!

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