Before Random House published it, five major publishers turned down Intensive Care, my book about bringing up a child with Duchenne muscular dystrophy. They thought the mother was "unsympathetic." She said the f-word.
photo by Nell Mednick
About Survivor Mom
I am the surviving, 75 year-old mother of Peter Weisman who died of Duchenne muscular dystrophy in 1980. I wrote a book called Intensive Care: A Family Love Story about the experience. The book is about how a family struggles and often thrives, even under the constant threat of death. This blog is my cyber-sequel. From a survivor's vantage point, I'm going to blog, in honest detail, about how life was then, and how it is now. Expect to feel better.
In my last blog, I asked parents of sons with DMD to suggest ways in which they helped their children to participate in more activities where they could interact with physically "normal" children.