photo by Nell Mednick

About Survivor Mom

I am the surviving, 75 year-old mother of Peter Weisman who died of Duchenne muscular dystrophy in 1980. I wrote a book called Intensive Care: A Family Love Story about the experience. The book is about how a family struggles and often thrives, even under the constant threat of death. This blog is my cyber-sequel. From a survivor's vantage point, I'm going to blog, in honest detail, about how life was then, and how it is now. Expect to feel better.

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I am not a saint; I’m you.

Sep 20, 2012

Before Random House published it, five major publishers turned down Intensive Care, my book about bringing up a child with Duchenne muscular dystrophy. They thought the mother was "unsympathetic." She said the f-word.

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Good-bye: An open letter

Jun 06, 2014

Good-bye: An open letter to parents, relatives, and friends of boys with Duchenne Muscular Dystrophy.

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To Tell or not to Tell – That is the question

Feb 20, 2014

Should I have told Peter that he was going to die? This is a question that haunted me during Pete’s15 ½ year lifetime and for the three decades since. I never made a conscious decision not to tell him.

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Crazy #2

May 15, 2013

Crazy is normal when you're trying to save your child's life.
Read Crazy #1 first!

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Parent Project Muscular Dystrophy

Nov 16, 2012

The cure for DMD and the cure for social isolation go hand in hand.

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One Day at a Time

Sep 27, 2012

When you get overwhelmed and depressed thinking about the future, here's a way to go sane.

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