Before Random House published it, five major publishers turned down Intensive Care, my book about bringing up a child with Duchenne muscular dystrophy. They thought the mother was "unsympathetic." She said the f-word.
photo by Nell Mednick
About Survivor Mom
I am the surviving, 75 year-old mother of Peter Weisman who died of Duchenne muscular dystrophy in 1980. I wrote a book called Intensive Care: A Family Love Story about the experience. The book is about how a family struggles and often thrives, even under the constant threat of death. This blog is my cyber-sequel. From a survivor's vantage point, I'm going to blog, in honest detail, about how life was then, and how it is now. Expect to feel better.
How crazy can you get when you’re trying to save your child’s life? Crazy enough to go to a spirit healer? It was 1972. Peter was eight years old. He had moved to a wheelchair the year before, the same year that I read a book called Healing Hands. The book told the story of an Englishman, George Chapman, apparently an ordinary fireman in the Aylesbury Fire Brigade. Mr. Chapman was experimenting with the paranormal when he discovered that he was able to go into a trance and channel the healing powers of a London surgeon named Dr. Lang.
In my last blog, I asked parents of sons with DMD to suggest ways in which they helped their children to participate in more activities where they could interact with physically "normal" children.
Throughout Peter’s childhood, especially when DMD began to slow him down, I wracked my brains trying to help him find friends and activities. What he didn’t have were “outside friends.”