My husband Larry and I are here today as DMD veterans – relics, really. I am not an expert on anything except our son Peter, who was diagnosed with DMD in 1968 at the age of 2, and died in 1980 at the age of 15. I have no credentials, unless you count perspective.
photo by Nell Mednick
About Survivor Mom
I am the surviving, 75 year-old mother of Peter Weisman who died of Duchenne muscular dystrophy in 1980. I wrote a book called Intensive Care: A Family Love Story about the experience. The book is about how a family struggles and often thrives, even under the constant threat of death. This blog is my cyber-sequel. From a survivor's vantage point, I'm going to blog, in honest detail, about how life was then, and how it is now. Expect to feel better.
In my last blog, I asked parents of sons with DMD to suggest ways in which they helped their children to participate in more activities where they could interact with physically "normal" children.
Throughout Peter’s childhood, especially when DMD began to slow him down, I wracked my brains trying to help him find friends and activities. What he didn’t have were “outside friends.”