photo by Nell Mednick

About Survivor Mom

I am the surviving, 75 year-old mother of Peter Weisman who died of Duchenne muscular dystrophy in 1980. I wrote a book called Intensive Care: A Family Love Story about the experience. The book is about how a family struggles and often thrives, even under the constant threat of death. This blog is my cyber-sequel. From a survivor's vantage point, I'm going to blog, in honest detail, about how life was then, and how it is now. Expect to feel better.

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My Speech delivered at the PPMD Conference in Baltimore

Jun 29, 2013

My husband Larry and I are here today as DMD veterans – relics, really. I am not an expert on anything except our son Peter, who was diagnosed with DMD in 1968 at the age of 2, and died in 1980 at the age of 15. I have no credentials, unless you count perspective.

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YOUR BLOGS ABOUT SOCIAL ISOLATION yield a harvest of good ideas.

Mar 21, 2013

In my last blog, I asked parents of sons with DMD to suggest ways in which they helped their children to participate in more activities where they could interact with physically "normal" children.

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Social Isolation: A tale of two boys, and a pop quiz for you

Feb 27, 2013

Throughout Peter’s childhood, especially when DMD began to slow him down, I wracked my brains trying to help him find friends and activities. What he didn’t have were “outside friends.”

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Parent Project Muscular Dystrophy

Nov 16, 2012

The cure for DMD and the cure for social isolation go hand in hand.

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