Peter had to get into a wheelchair. He was falling to his knees, and cracking the back of his head on the floor. These falls were so painful and frequent that he had a permanent egg on the back of his head.
photo by Nell Mednick
About Survivor Mom
I am the surviving, 75 year-old mother of Peter Weisman who died of Duchenne muscular dystrophy in 1980. I wrote a book called Intensive Care: A Family Love Story about the experience. The book is about how a family struggles and often thrives, even under the constant threat of death. This blog is my cyber-sequel. From a survivor's vantage point, I'm going to blog, in honest detail, about how life was then, and how it is now. Expect to feel better.