photo by Nell Mednick

About Survivor Mom

I am the surviving, 75 year-old mother of Peter Weisman who died of Duchenne muscular dystrophy in 1980. I wrote a book called Intensive Care: A Family Love Story about the experience. The book is about how a family struggles and often thrives, even under the constant threat of death. This blog is my cyber-sequel. From a survivor's vantage point, I'm going to blog, in honest detail, about how life was then, and how it is now. Expect to feel better.

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One Day at a Time

Sep 27, 2012

I have never been an alcoholic, although having a child with Duchenne Muscular Dystrophy can certainly drive you to drink. However, I do find the AA mantra – one day at a time – useful advice for those of us who are tempted, at our peril, to imagine wheelchairs while our children are still walking, or, even worse, death when they’re still very much alive.

When we received the diagnosis of DMD I hopped right on the catastrophe express and rode it straight to the last stop. It was my husband, Larry, who flagged me down. “Today is only Tuesday,” he said. “It is not all the days of the week and all the years of his life, and everything that is going to happen is not happening all at once.”

Have you ever ridden a bike up a steep hill? If you look at the hill looming before you, you are likely to feel overwhelmed and defeated. However, if you keep your eyes trained on the road directly beneath your pedals, you are more likely to make it to the top.

Please stop thinking about tomorrow. Now is quite enough.